About Me
My name is Michael Trey Lane . I turned 4 years old last April. I live in Chandler , Arizona with my Mommy, Daddy and two big brothers Drake and Broc. A year ago I was misdiagnosed with MPS VI but already this year has proved to be better in that my new doctor in Minnesota has now correctly diagnosed me with MPS IV-A. Although there is no cure nor treatment for my disorder, I have been told that an infusion therapy is being tested and is in Phase I and II of clinical trials, taking place in Birmingham, England as we speak.…my prayer is that these trials are bringing encouraging results by crossing the blood bone barrier and that Phase III will be brought to the U.S.A. within the next few years and also that I will be lucky enough to be chosen for it. Although going through weekly infusions for 43 weeks essentially for “nothing” was a lot to endure for me and my family, I pray that someday soon treatment will again be available for me and my little body.
My name is Michael Trey Lane . I turned 4 years old last April. I live in Chandler , Arizona with my Mommy, Daddy and two big brothers Drake and Broc. A year ago I was misdiagnosed with MPS VI but already this year has proved to be better in that my new doctor in Minnesota has now correctly diagnosed me with MPS IV-A. Although there is no cure nor treatment for my disorder, I have been told that an infusion therapy is being tested and is in Phase I and II of clinical trials, taking place in Birmingham, England as we speak.…my prayer is that these trials are bringing encouraging results by crossing the blood bone barrier and that Phase III will be brought to the U.S.A. within the next few years and also that I will be lucky enough to be chosen for it. Although going through weekly infusions for 43 weeks essentially for “nothing” was a lot to endure for me and my family, I pray that someday soon treatment will again be available for me and my little body.
